This Is PainfulĀ 

Even as I write this, I feel like I am not ready to. 

This is painful.

Two weeks ago, for the first time, I looked at my lap into the path of lines that faced one another like strange figures meeting for the first time. It was so alien to me. Staring deep into its gaze, I was haunted by the disappointment and the fear of overlooming judgment that would be casted on me by familiar onlookers in my life. 

I feared the fear itself. 

I sat there and I wept at the idea of loss before it even happened. 

I never knew a feeling like it even existed. 

Days passed and things made sense to me. The way I sensed things were heightened and I felt the most innate of instincts kick in. For a moment in this brief life, I felt I had some purpose to fulfill. 

In reality, I could not fulfill it.

In reality, it broke my heart. 

In one week I had possessed blissful ignorance – this idea that I had the “fortunate unawareness of something unpleasant”. As everything was happening so quickly, I had no means of processing everything the way I wanted to or in a healthy manner. I took an idea, I wrapped my head around it, and then, I ran with it without thinking of the physical and emotional costs. 

But later on, I decided that the idea in which “I made the right decision” was the best and only alternative. And, to think, I thought that idea was going to make this any more easier…

Well, I did say blissful ignorance, right? 

This is painful.  

I did not acknowledge what happened to me overnight. I did not take a moment to grieve for myself or for the part of me I lost. 

I am not coping well.

This is painful. 

I am trying to find reasons to help myself heal but I know I will not find that today.

I am trying to hold back tears and hold my head up but I know I will be sad and hurt.

From the physical pain to the emotional pain, I am doing the best I can to deal with my sense of loss. 

For now, this is painful.

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Let Me Be

I need people to understand that I know what is best for me.

Unfortunately, I did not plan on getting sick.

My illness does not make me any less of the person I am or choose to be and if I allow my illness to do that, then it wins and I lose.

Every day I wish and hope that I can live a normal life and not have to worry about getting sick today or tomorrow, but I know that is not the reality of my situation. I have to be careful and watch out for my health because my immune system cannot always keep up with the things I want to do. I have to worry about taking medication religiously. Things I have to worry about, normal people with good health do not have to worry about.

But, I am fortunate to still be able to do what I want to do.

Things could always be worse.

If I feel like I am capable of doing something, people need to stop trying to force me to take care of myself better. Do they not understand that I know this? I try and I try. But, to be reminded of my own struggle by people worrying for me does not help. I want to remain positive. I want to remain normal. I know some people may worry about me constantly and I am grateful for that, but if tomorrow were my last day at least I can say I lived it the way I wanted to.

At least, let me have that.

For those of you that do not know, I am living with chronic myeloid leukemia (CML). CML is a type of leukemia in which your white blood cells are overproduced and eventually produce immature blood cells that do not allow your normal ones to function well. I am in remission as we speak and I take medications daily to prevent the genes of my cancer from replicating which prevent the cancer from becoming worse. I am living with it and the key word is “living”. That is what matters and some people need reminding. Like I said, it could always be worse. I appreciate and love my life despite the struggle of trying to keep healthy all the time. I only hope people can see it from my point of view, too. Maybe one day others will understand that I am struggling more with the way they deal with it than the way I do.

Hurting Silently

It is difficult to bounce back from a negative situation.

You exhaust yourself seeking resolution after resolution.

Maybe you just are not ready to be charmed by simple words and phrases like, “It will be okay”, “Tomorrow is another day” or “You will just be fine” and “Think positively”?

Maybe you just want to grieve a little bit and cry?
Maybe you just need a shoulder and a hug?

But, what until then when it is so hard to hurt silently.